Lots has been going on health-wise but I’ve had a hard time writing about it (or about anything). I am working on giving myself permission to not feel guilty about my lack of posts, but it’s a work in progress. However, since I have some good news to share, I thought I would finally write something. :}
About six weeks ago I started Enbrel. It’s been a challenge (mostly, a challenge to deal with my fear of needles so I can self-inject once a week). It’s not getting easier, but I’m more confident that I’m not going to do myself serious injury in the process. It’s hard to say how much impact it’s having- it’s still pretty early in treatment, but my energy is better and the arthritis in my feet and toes is hugely improved, which helps me get on the treadmill and is always a good thing. I do find myself getting fatigued more easily and sleeping more/taking naps on weekends, but hopefully that’s just part of the adjustment process (whether to the medicine, the exercise, or both).
The biggest positive outcome is that I am now off the sulfsalazine (which didn’t seem to have any effect on my RA whatsoever). That means four less huge pills a day and they’re not turning my hands and other pills yellow any more. Yay! If all continues to go well in the next couple of weeks I can taper off of Prednisone (which would make me SO happy).
It’s hard to think that I have been trying to treat my RA for nine years now and we’re only just starting on biologics. I track when I stop medications, and it’s a long list of trying different things with only partial success. It’s not a magic cure (if only!), but the rate of temporary remission is fairly high and I have hopes. It’s not likely that I’ll ever be 100% pain-free, but any reduction is welcome.