The HA Chat today was very enlightening. One realisation, however, is that even with using a tool like TweetChat I had a very hard time following the stream of conversation (or I could follow as long as I didn’t try to reply to anything!).
One item that came up was effectively communicating pain to our doctors. I wrote a custom pain scale a while back and update it periodically. I wanted to link to the the chat, only to find that I didn’t have it in a sharable format, so I am posting it here for future use. This varies on my current treatment, so I actually had to update it again.
Current Treatment: 375 mg naproxen twice daily
0. Pain free – None. None.
1. Mild discomfort – Mild stiffness and aches in some joints. Not noticeable if distracted. No physical impairment. No treatment.
2. Moderate Discomfort – Moderate stiffness and aching in some joints. Some redness and swelling. Still noticeable despite distractions. Some physical impairment (limping, clumsiness with hands). 1 Tylenol Arthritis.
3. Persistent mild discomfort – Tylenol partially or completely alleviates pain; mild enough that pain is not noticed if distracted or can be ignored.
4. Persistent moderate discomfort (manageable) – Occasionally stabbing or sudden pain in joints. May suddenly lose grip or experience muscle cramps or spasms. Tylenol only partially alleviates pain; reduced discomfort cannot be ignored. Add 1 Tylenol Arthritis and/or attempt alternative methods: pressure gloves, heat therapy, massage, light stretching.
5. Persistent moderate discomfort (not manageable) – Alternative methods provide some relief. Able to function but actions limited (bending, lifting, fine motor skills). Distracted.
6. Pain – Alternative methods provide little or no relief. Sleep difficult and/or broken. Electrotherapy, muscle relaxant.
7 . Intense pain – Cannot sit at a desk or type for more than 15 minutes. Cannot focus. Difficulty holding a book. Prednisone.
8 . Pain wins – Non-functional. Crying from pain.