So, today marks my first full week without scary RA meds. This is a big accomplishment, but anyone who knows about it keeps asking how I feel. As much as I’d love to say “Fantastic! I can feel chemo poison draining from my veins as we speak!” it just doesn’t work that way. I haven’t noticed a significant increase in RA issues, which is good, but I still have plenty of side effects that I assume will lessen in severity over time. I have to remind folks (and myself) that it takes almost six months for the last traces to leave my system- it took me a year to get to this point so it won’t clear up overnight.
That said, I’m exhausted. I’ve been see-sawing between extreme insomnia (less than four hours sleep) with bad TMJ attacks (usually caused by stress) and sleeping 19 hours in two days over the weekend (which was AWESOME by the way!). I am still getting over blisters in my throat from accidental garlic ingestion last week- that hurts like a b*tch. Add wacko dreams last night and a sinus migraine this morning and I’m barely functioning. I expect much of this has to do with work stress, which is very hectic right now and will be for the next 2-3 weeks at least. I think I need to plan a day or two off, just for sanity’s sake.
I am also worried for one of my best friends. In addition to being my RA sister, she has now been diagnosed with Sjorgen’s Syndrome as well. She is pregnant with her second little one (a girl! I get to buy gifts!) but they’re naturally very worried about both mom and baby. The fact that her son is doing well is a good sign. these diseases are so brutal and there’s still so much we don’t know- it’s overwhelming at times.
Anyway, best get back to work. I’ll post my cane review after the next time it rains. Of course once I buy the no-slip tip we have sunny weather for two weeks. Also, my hair is getting very long. Yay! (in good news- it’s the fullest it’s been in years- yay less hair loss!)